Shriner's Hospital
516 Carew St.
Springfield, MA 01104
Telephone 413-787-2000
Fax 413-787-2009
http://www.shrinershq.org/shc/springfield/

Shriners Hospitals for Children
2425 Stockton Blvd.
Sacramento, CA 95817
(916) 453-2000
Provides free prosthetics and corrective surgery to children from low to moderate income families.
http://www.shrinershq.org/

Amputee Coalition of America, ACA
Amputee Coalition of America
900 East Hill Avenue, Suite 285
Knoxville, Tennessee 37915-2568
1-888-AMP-KNOW
1-888-2 6 7-5 6 6 9
Knoxville: 865-524-8772
Fax: 865-525-7917
The Amputee Coalition of America (ACA) is a national, non-profit amputee consumer educational organization representing people who have experienced amputation or are born with limb differences. The ACA includes individual amputees, amputee education and support groups for amputees, professionals, family members and friends of amputees, amputation or limb loss related agencies, and organizations.
http://www.amputee-coalition.org/index.html

Rehabilitation Engineering Center
Lucille Salter Packard Children's Hospital at Stanford
725 Welch Road
Palo Alto, Ca. 94304
(650) 497-8000
Orthotics, Prosthetics, AAC, Seating, and Therapy. Limb bank provides prosthetics for low income children.
http://www.med.stanford.edu/lpch/rec/

Variety Myoelectric Center at the Rehabilitation Institute of Michigan
Office: (248) 258-5511
Fax: (248) 258-5575
E-mail: variety5@msn.com
A children's charity that provides a broad spectrum of programs dedicated to the comfort and care of handicapped children. Largest limb bank in the world, provides life-like artificial limbs, therapy and support to children (and their families) from around the world.
http://www.variety-detroit.com/program.htm#myoelectric

Information about Chorionic Villus Sampling
Caroline K. McGuirk
Project Coordinator
Massachusetts General Hospital
55 Fruit Street
Boston, MA 02114-2696
(888) 287-0738 
Chorionic Villus Sampling (CVS) is a method of prenatal diagnosis. Beginning in 1991 there were reports of infants born with serious limb deficiencies, and sometimes other birth defects (hemangiomas and cranial nerve palsies), who had been exposed to the CVS procedure. Currently looking for children to participate in their research study.
http://neuro-www3.mgh.harvard.edu/cvs/cvs.html

Journal of Prosthetics and Orthotics
Electronic Limbs for Infants and Pre-School Children
http://www.oandp.com/organiza/aaop/jpo/44/44184.htm

World Association of People with Disabilities
This website deals with all disabilities and has a monitored teen chat room.
http://www.wapd.org

One-handed recorder company 
http://www.rhythmband.com

Superhands Network
http://www.superhands.us

Limbdifferences.org
An online resources for families and friends of children with limb differences. 
http://www.limbdifferences.org

Ontheotherhand.org
This website is intended to provide information, support, and suggestions for parents, relatives, and friends of children with hand differences.
http://www.ontheotherhand.org

Active Living Magazine
http://www.activelivingmagazine.com
P.O. Box 2659
Niagara Falls, NY 14302-9945
800-725-7136. 
"The Source for health, fitness and activity information for amputees.  Provides amputees with a reliable resource for attaining or maintaining an all-important active, healthy lifestyle."

Federation for Children with Special Needs
http://www.fcsn.org
The Mission of the Federation for Children with Special Needs is to provide information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. We are committed to listening to and learning from families, and encouraging full participation in community life by all people, especially those with disabilities.

Amputeddy
http://www.amputeddy.com
A 23" teddy bear with one amputated limb and a matching prosthesis. AmpuTeddy was born in 1988.  Each was handmade by Jean Boelter, her mother Ann Crowley, or her sister Marta Creswell as a gift for a specific person.  After hundreds of AmpuTeddys, the 'demand' was growing exponentially. In 2003 Jean and Marta founded AmpuTeddy, Inc. 

Limb Loss Education and Awareness Program (LLEAP)
Sponsored by the Amputee Coalition of America

LLEAP addresses a key problem: the social stigma of children with disabilities, particularly those with a limb difference. The curriculum is based upon the premise that children can be taught to recognize and appreciate differences in themselves and others. Through a sequence of multi-sensory activities, children will:

• Realize that individuals are more alike than different
• Identify their own strengths and attributes
• Develop an appreciation for the strengths and accomplishments of other people
• Explore interdependence and the nature of the helping relationship
• Become aware of how limb loss/limb difference might affect daily activities
• Appreciate the strengths & accomplishments of individuals with limb loss/limb differences
• Understand the types, functions, and limitations of prostheses

With more than twenty classroom activities, the curriculum can be adapted for use with children from preschool through sixth grade.

http://www.amputee-coalition.org/publications_lleap.html
(A press release from the ACA and these files are also stored in our Discussion Forms.)

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